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Latest blogs

Sunset view of the Motlawa River embankment with historical buildings in Gdansk, Poland.
National Member News – Hello from Poland
March 18, 2024
Rare Disease Day 2024 banner with people from diverse backgrounds and colourful handprints symbolising global unity and awareness for rare diseases
Rare Disease Day 2024!
February 29, 2024
Detailed close-up of skin texture, representative of the dermatological focus in skin lupus studies
Stepping Up for Skin Lupus: An ePAG in ERN Skin
January 8, 2024
Festive Christmas background with evergreen branches, pine cones, red berries, walnuts, and a gift wrapped in kraft paper.
Happy Holidays from LUPUS EUROPE
December 24, 2023
Advocating for Lupus Awareness: EULAR Congress 2023
December 11, 2023
Illustration of an online webinar with diverse virtual attendees and speech bubbles indicating an interactive discussion
Webinar: CAR-T Cell Therapy in Lupus — Promises and Challenges Explored
November 27, 2023

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    Country Level Data Norway

Latest Videos

Mitochondria in Systemic Lupus Erythematosus (SLE)
Mitochondria in Systemic Lupus Erythematosus (SLE)
Oct 24, 2022
Sjögren's Syndrome in Lupus: Does it Change Anything?
Sjögren's Syndrome in Lupus: Does it Change Anything?
Oct 24, 2022
Non-Atherosclerotic Cardiovascular Disease in SLE and APS
Non-Atherosclerotic Cardiovascular Disease in SLE and APS
Oct 24, 2022
70 Years Learning to Use Glucocorticoids
70 Years Learning to Use Glucocorticoids
Oct 24, 2022
Refractory Skin Manifestations in Lupus
Refractory Skin Manifestations in Lupus
Oct 24, 2022
Risk Gene Linked to Cardiovascular Disease
Risk Gene Linked to Cardiovascular Disease
Oct 24, 2022

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LUPUS EUROPE
2 days ago
LUPUS EUROPE

♦️ Few days left to fill the survey!

✍🏻 Realiza la encuesta.

🔊 Comparte con tu comunidad.

🙏 Help us and Felupus ensure the Spanish population is represented

s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs ... See MoreSee Less

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LUPUS EUROPE
3 days ago
LUPUS EUROPE

🦋 It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:

1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.

👨‍💻 We're gathering data to:

🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.

🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨‍👩‍👧‍👦 how lupus affects your daily activities and the strategies you employ to manage it.

🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.

Languages available:

🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8

Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus ... See MoreSee Less

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LUPUS EUROPE
4 days ago
LUPUS EUROPE

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍️ Responda à pesquisa e compartilhe com sua comunidade.

🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi

#LupusAwarenessMonth ... See MoreSee Less

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LUPUS EUROPE
5 days ago
LUPUS EUROPE

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0

🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results ... See MoreSee Less

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1 CommentComment on Facebook

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