Alain CornetWorld Lupus Day is just one week away…
The World Lupus Federation which encompasses the LFA, LUPUS EUROPE and other world Lupus organisations, has set up a website specially dedicated to World Lupus Day. On the site you can find out more about different activities throughout the world, download a Lupus toolkit and sign the petition asking for lupus to be made a priority for the WHO (World Health Organisation).
Are you aware of the new recommendations on physical activity and exercise for patients with SLE?
Find out here 👉 https://loom.ly/2S3OoJg
@Lupusreference @mugartegil @IoannisParodis #MedEd #MedTwitter #lupus #RheumTwitter
✅ May is #Lupusawareness month!!! 🦋 Let's spread the word! #Lupus is an #autoimmune disease affecting approximately 3.4 MILLION people in the world 🌎🌍🌏 and is associated with a wide range of #symptoms, some of which are not always visible!
🙏 Si vives en España y no lo has hecho aún, rellena esta encuesta en español de @lupuseurope.
🦋 Necesitamos un buen número de respuestas de pacientes españoles para obtener datos más reales con los q poder trabajar para mejorar la calidad de vida de las personas con #lupus.
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
https://s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and @GruppoLesItalia achieve more answers to ensure that the Italian population is represented in the results
✅ If you have not downloaded 📥 the 2024 #Lupus 'SEMINAR' 🧑🎓 from @TheLancet ⬇️ please keep in mind that this is a temporary (free) link ⏳ provided by the Editor before this moves on to regular download 😉⬇️⬇️⬇️
❗Save the date❗
🤩Lupus Europe is excited to invite you to a unique event on #WorldLupusDay:
🧑💻“Lupus & Youth: A Dialogue between the Lupus Europe Youth Group & a Young Rheumatologist”
📆 10th May
🕖 19:00 CET
‼️ Register now! Send an e-mail to secretariat@lupus-europe.org
📢The call to submit your late-breaking abstracts to #EULAR2024 is open!
🔔Upcoming Deadline: 28 April 2024
Submit your clinical and scientific breakthroughs today👉https://pulse.ly/bwpafhygzd
#eularCONGRESS #EULAR #Rheumatology
🇮🇹The first paper of the Italian Registry of #pregnancy in #rheumaticdiseases is out!🤰
Cannot express enough gratitude & pride to
🙏outstanding investigators collecting data since 2018
🙏@SIRreumatologia for the support
🙏>1000 patients for participating
https://rmdopen.bmj.com/content/10/2/e004091
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍️ Responda à pesquisa e compartilhe com sua comunidade.
🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results
s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
#LupusAwarenessMonth
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
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📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗
🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:
🧑💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”
🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.
📆 10th of May.
🕖 19:00 CET.
🙌 A space dedicated to discussing issues that impact youth, by the youth and for the youth.
This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.
👩⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.
Don't miss the chance to interact directly with a specialist in rheumatology!
🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.
‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results
buff.ly/3xGBU6T
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