Alain Cornet
The new Regulation on personal data protection (EU/2016/679) was published in May 2016 and will apply from May 2018. It provides more rights to citizens to be better informed about the use made of their personal data, and gives clearer responsibilities to people and entities using personal data… to read more.
🌍 Our 2026 #WORDDay2026 webinar brings the theme: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”.
We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us 👉https://pulse.ly/5md2ddjls9
🔴 Tomorrow is #WORDDAY!
And we will be sharing tips & information on how #lupus can affect children.
Help us raise awareness, which is 🔑 for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our tweets & follow the #WORDDAY2026 campaign
🌟 Our #ELM2026 Recap Webinar is today!
👨⚕️ Some of the presenters will share key takeaways from their talks.
🦋 Also, some of our volunteers & PAN members will share their insights from the @SLEuroSociety
event.
Don’t miss it!
Register now by ✉️ secretariat@lupus-europe.org
✅ For all questions about #lupus, remember you can visit #LupusGPT & #EasyLupus: multilingual AI tools developed by Lupus Europe, powered by 🔝sources including #Lupus100.
🌐 Visit https://f.mtr.cool/adnlzftnyx & https://f.mtr.cool/ozemfhjjsl for reliable answers to your lupus questions!
🌟Your physician is the best source of information. Turn to them for information on early signs of kidney disease & what to do if you spot any.
✅ You will get your kidney function assessed in every check-up visit. Never skip one, even if you feel ok.
#WorldKidneyDay
Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶♂️ 🏃♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take appropriate fluid intake
6️⃣ Don't take NSAIDs regularly
#WorldKidneyDay
🚨 #Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:
1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure
#WorldKidneyDay
‼️ Although #lupus nephritis remains one of the most serious complications for #SLE patients, early diagnosis and adequate treatment make remission possible in many cases.
✅ To achieve this, it is crucial that patients do not skip their routine check-ups.
#WorldKidneyDay
🔴 Tomorrow is #WORDDAY2026!
🦋 And we will be sharing tips and information on how #lupus can affect children.
Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.
More information on lupus in children at #Lupus100 (19 languages):
f.mtr.cool/hnfukbkwdf
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Watch this Lupus Europe Webinar on the European Lupus Meeting (ELM) 2026, As Viewed by Lupus Europe's PAN Members & Volunteers!
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Thank you so much for bearing with us. We’re experiencing some unexpected technical difficulties with Facebook Live in relation to the European Lupus Meeting (ELM) 2026 webinar due to air at 19:00 CET. The webinar is being recorded, and we will make sure it is shared with you as soon as possible.
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