Alain Cornet
The new Regulation on personal data protection (EU/2016/679) was published in May 2016 and will apply from May 2018. It provides more rights to citizens to be better informed about the use made of their personal data, and gives clearer responsibilities to people and entities using personal data… to read more.
The 4th SLEuro Advanced Workshop on SLE was succesfully completed in Porto!
Keep up-to-date to register for the next Workshop! ⏰
Check out the past editions at the bottom of the following webpage: https://sleuro.org/advanced-workshop-on-sle/
✅ Only 10% of #lupus patients are men.
‼️ However, their symptoms & disease burden may differ from those commonly reported by women.
🇪🇺 If you're a man with lupus in Europe, fill out this survey & help us better understand the real impact of SLE on men
https://buff.ly/3UMZkAQ
🟪May is #LupusAwarenessMonth 🟪
Raise #awareness about #lupus may increase early diagnosis ⏰ and consequently reduce its complications 🚨
Our review focuses on #SLE disease course providing actionable strategies for early diagnosis
OPEN ACCESS link ⬇️
https://www.sciencedirect.com/science/article/pii/S1521694224000093
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Weź udział w ankiecie.
🔊Udostępnij w swojej społeczności.
🙏 Help us achieve more answers to ensure that the Polish population is represented in the results
https://s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🌟Have you heard about RheumaFacts, the new initiative from EULAR Research?
👉Learn more about the initiative here!
✅ During STEP 3, a total of 234 potential #treatment strategies have been submitted by the experts of @ern_reconnet #SLICC & @SLEuroSociety for rare #Lupus manifestations. I will do a lil bit of triage and duplicate removal and we will pick the winners🏅during phase 4 👌
♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and @felupus ensure the Spanish population is represented
https://s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
📢 Explore captivating sessions promoting high-quality research, enhancing clinical practice, and support the professional development of healthcare practitioners.
📅 See you in Vienna from 12 - 15 June!
👉https://pulse.ly/omc4parykm
#EULAR #Rheumatology #eularHPR #EULAR2024
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Weź udział w ankiecie.
🔊Udostępnij w swojej społeczności.
🙏 Help us and Lupus Poland achieve more answers to ensure that the Polish population is represented in the results
s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
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♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and Felupus ensure the Spanish population is represented
s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
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🦋 It's #LupusAwarenessMonth❗
🦵 #KickLupus: make it visible
Take part in the Living With Lupus in 2024 survey.
🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:
1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.
👨💻 We're gathering data to:
🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.
🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨👩👧👦 how lupus affects your daily activities and the strategies you employ to manage it.
🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.
Languages available:
🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8
Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍️ Responda à pesquisa e compartilhe com sua comunidade.
🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results
s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
#LupusAwarenessMonth
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