Alain CornetThere are just under two weeks to go before LUPUS EUROPE holds its annual convention. This year we will be in Würzburg, Germany and also celebrating the 30th anniversary of one of our members, Lupus Germany.
We are looking forward to an inspiring convention, with lots of things to share. See you there!
💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management.
🏃Did you know exercise has been shown to improve SLE symptoms like #fatigue?
More at #Lupus100 https://f.mtr.cool/tdmxzdwibs
Also, follow our exercise programme!
#WORDDAY2026
#Lupus might sound scary at first, but the diagnosis doesn't mean your child will not be able to have a normal life.
Talk to your doctor about infection prevention & self-care measures.
Find reliable information on #Lupus100 https://f.mtr.cool/yhycnkhsny in your language
#WORDDAY2026
😰The moment your child is diagnosed may be overwhelming for you. This can go away with time & access to the✅ information like https://f.mtr.cool/gajrvolzrw
Remember: it is impossible to learn everything about #lupus overnight! Your child's Dr is the best source of ℹ️
#WORDDAY2026
Every child deserves a pain‑free future. But for many, rheumatic diseases are a reality. Early signs are often missed, affecting growth, learning, and emotional well‑being.
On #WORDDay we join the global community in raising awareness of paediatric rheumatic diseases.
Symptoms of #lupus in children are the same as in adults, including:
👉 Low-grade fever for no apparent reason
👉 Fatigue
👉 Joint pain
👉 Butterfly rash
👉 Sores in the mouth or nose
👉 Weight loss
Raising awareness of the symptoms is key for an early diagnosis
#WORDDAY2026
🦋 Lupus can affect people of any age & gender.
🧒 Did you know that 20% of #lupus patients are below their 20's?
⚠️ Although it is the same disease as in adults, children with SLE can have greater disease severity & earlier accrual of disease damage than adults.
#WORDDAY2026
🌍 Our 2026 #WORDDay2026 webinar brings the theme: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”.
We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us 👉https://pulse.ly/5md2ddjls9
🔴 Tomorrow is #WORDDAY!
And we will be sharing tips & information on how #lupus can affect children.
Help us raise awareness, which is 🔑 for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our tweets & follow the #WORDDAY2026 campaign
🚨 Today is #WORDDAY2026! Which stands for WOrld Young Rheumatic Disease Day.
🌍 Through this global event, we can spread the word that children and young people get rheumatic diseases like lupus, too.
‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age.
As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.
🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.
😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.
👉 Remember: it is impossible to learn everything about #lupus overnight! Your child's doctor is the best source of information.
Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.
📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.
🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!
Turn to your lupus association for support.
🤗 There are many organisations across Europe that can help you and your child cope with the disease.
More information on #SLE in children at #Lupus100: f.mtr.cool/oklkpqamyu
For more information on WORD Day, you can visit World Young Rheumatic Diseases Day - WORD Day
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🔴 Tomorrow is #WORDDAY2026!
🦋 And we will be sharing tips and information on how #lupus can affect children.
Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.
More information on lupus in children at #Lupus100 (19 languages):
f.mtr.cool/hnfukbkwdf
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Watch this Lupus Europe Webinar on the European Lupus Meeting (ELM) 2026, As Viewed by Lupus Europe's PAN Members & Volunteers!
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Thank you so much for bearing with us. We’re experiencing some unexpected technical difficulties with Facebook Live in relation to the European Lupus Meeting (ELM) 2026 webinar due to air at 19:00 CET. The webinar is being recorded, and we will make sure it is shared with you as soon as possible.
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