Alain CornetFor World Lupus Day, we have collected a few patient stories which we hope you will enjoy. If you have a story to tell, feel free to get in touch and send your story to katharine@lupus-europe.org! All stories will remain visible on this page of the blog. My life with lupus – living to the […]
Alain CornetHere are a few pics from runs Andreas has taken part in so far… And, once again, a new post has been added to Andreas’ page. To read all about what he’s been doing so far, click here.
Alain CornetMay 10th – World Lupus Day “Lupus knows no boundaries”. Special online events global campaign Please go to www.worldlupusday.org for further information. 11th May – EPF Access to healthcare workgroup meeting in Düsseldorf. Katharine Wheeler attending. June 8-11th – EULAR Congress, London, UK. This year LUPUS EUROPE and LUPUS UK will share a stand in EULAR […]
Alain CornetAs we approach World Lupus Day again, it’s a good time to share the video made last year about the importance of World Lupus Day. Feel free to share! [youtube https://www.youtube.com/watch?v=ae14ZLCdbqg&w=560&h=315]
Alain CornetWorld Lupus Day is just one week away… The World Lupus Federation which encompasses the LFA, LUPUS EUROPE and other world Lupus organisations, has set up a website specially dedicated to World Lupus Day. On the site you can find out more about different activities throughout the world, download a Lupus toolkit and sign the petition […]
Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at http://notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness
🚨 Calling all lupologists!
✅ Kindly share our Living With Lupus survey and help us get as many responses as possible.
🇪🇺 Available in 21 languages!
https://buff.ly/3VZLsEc
✅ Just 3 more days before the 4th @SLEuroSociety Advanced #Workshop for #Lupus of Porto (19-20 April) and I'm happy to share my recap slide about antinuclear antibodies (#ANA) in #SLE 📝 We're going to discuss atypical lupus cases...so it's good to know what is typical first 👍
Part 2 of our #LupusNephritis case-based modules reviews treatment guidelines for #lupus nephritis and the prevention of chronic #kidneyDisease, with expertise from @ykoteng_LUMC and Luis Quintana: http://lupusCME.org #RheumTwitter #rheumatology #SLE #kidney #CME #autoimmune
Our Board & extended Board met last week for 2️⃣ full➕exciting days of work on the strategic plan. Lots of exciting plans in the pipeline🤩!
We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about our work.
More on that 🔜 in the newsletter!
Desde Lupus España ( @Felupus ) 🙏 os pedimos 🙏 vuestra colaboración para difundir y rellenar esta encuesta para pacientes “SWISS KNIFE SURVEY” de @LupusEurope en Español 🇪🇸
Enlace https://www.surveylegend.com/s/5h8u
⏳️En 15 minutos tu voz y realidad será trasladada y ➕️ visible❗️
✍🏻Попълнете анкетата.
🔊Споделете с вашата общност.
👨🏼⚕Ако сте здравен специалист и лекувате пациенти с лупус в Европа, ще сме много благодарни, ако информирате вашите пациенти.
https://s.surveylegend.com/-NuOC4mQDrt8udTrqS85
Hello lupologists!
A SLESIS-R >6 = likelihood ratio of 5.5 to develop an infection in the next year.
SLESIS-R: an improved score for prediction of serious infection in patients with systemic lupus erythematosus based on the RELESSER prospective cohort https://lupus.bmj.com/content/11/1/e001096
Tässä Lupus Europen kysely, vastauksia toivotaan myös miehiltä. Vastausaikaa on tiistaihin 30.4. asti
s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
0 CommentsComment on Facebook
Drogie Motylki, 🦋🥰
mamy do Was prośbę o wypełnienie ankiety LUPUS EUROPE.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
Udział w tego typu ankietach ma wpływ na badania, zatwierdzenie leków, praktyki lekarskie oraz na publikacje naukowe wyników, które są cytowane w różnych artykułach w czasopismach medycznych.
Dzięki poprzedniej dużej ankiecie powstał lupus100.org
Dlatego bardzo prosimy o poświęcenie kilku minut na wypełnienie ankiety. Dzięki temu, mamy wpływ na to, co dla nas jest najważniejsze.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
#lupuspoland #lupuseurope #ankieta #toczeń #sle
0 CommentsComment on Facebook
LUPUS EUROPE is conducting a survey to gather insights into the experiences of individuals living with #lupus across Europe.
🌍 In 2020, Lupus Europe launched a large “Living with lupus survey”. Thanks to the huge participation from patients around Europe, the insights from this survey are largely used. Time has now come for a new survey, with different topics, to add to our knowledge of what it means to live with lupus in 2024.
👤 The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages.
🔗 Click the following link to complete the survey: www.surveylegend.com/s/5h8u
Thank you for sharing your views!
#LupusAwareness #LupusResearch #SLE #LupusCommunity
0 CommentsComment on Facebook
;
