💜 World Lupus Day 🌍
At #ERNReCONNET, we are profoundly committed to supporting the lupus community @LupusEurope
Together, let’s #MakeLupusVisible by raising awareness and sharing knowledge
🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲❗
And now it is easier than ever to raise #LupusAwareness thanks to #Lupus100 and #LupusGPT!
Check https://lupus100.org/ & https://lupusgpt.org & find reliable information about #lupus in many languages!
#MakeLupusVisible
✅ Today, 10th of May 2026, is the world #lupus day 🦋
Re-tweet 🔄, spread the word, let the world 🌍🌎🌏 be aware of this complex #autoimmune disease with so many facets 💎, including invisible ones.
#worldlupusday
#lupusday
🤩 May 10 is #WorldLupusDay! And our Youth Group is commemorating it with a webinar on fertility & family planning in young people with lupus.
📅 May 10
🕖 7 pm CET
🎙️ Prof. @lauraandreoli80
🗣️Moderated by our Chair, @Jeanette_Lupus
Join us! Email secretariat@lupus-europe.org
Joining the global community
raise #Lupus awareness with @LupusEurope
Together we can #MakeItCount on May 10. #LupusAwarenessMonth
🌈 Beyond what you’ve experienced, something awaits.
🌟 A new way to approach your consultation is coming.
Make your consultation count.
💥 Stay tuned
#MakeItCount
🆘 Skin matters in lupus.
‼️75–80% of people with SLE experience skin involvement, yet skin lupus has seen no new treatment options for over 80 years.
WHO’s draft Global Action Plan on Skin Diseases is open for consultation.
🗣️ Add your voice by 10 May 👇
#WHO has opened a public consultation on its draft Global Action Plan for Skin Diseases.
Your input can help shape how countries act and ensure accountability for the 2B+ people affected.
🗣️ Make your voice heard
📅 Deadline: May 10, 2026
👉 https://www.who.int/news-room/articles-detail/public-consultation--draft-global-action-plan-on-skin-diseases-as-a-global-health-priority-(gap-skin)
❤️🔥 Something big is coming...
... this #WorldLupusDay 🌍.
#MakeItCount
🦋 #WorldLupusDay is coming to an end!
❤️ Thank you all for the support you have shown throughout this important day, as people around the world have come together to raise awareness of the impact lupus can have.
🌈 At Lupus Europe, we believe there is something very important we also need to show the world: our vitality, our energy, and our will to enjoy life, take part, contribute, and be heard.
🌟 Our vision is a fulfilling life for all people with lupus in Europe, until we reach a world without lupus.
😃 We work hard. We show up. We support each other. We all live with lupus in different ways, even if our amazing Lupus Europe family sometimes seems to forget about it when we are at an event, in a meeting, or working together for the organisation.
🦋 Lupus is an invisible illness with many faces. Let’s close this #WorldLupusDay with our hopes, our laughter and our enthusiasm for life.
💬 That is why today we also want to remind you of our #MakeItCount campaign and the 𝐋𝐮𝐩𝐮𝐬 𝐂𝐨𝐧𝐬𝐮𝐥𝐭𝐚𝐭𝐢𝐨𝐧 𝐂𝐚𝐫𝐝𝐬.
These cards are designed to help people living with lupus prepare for medical appointments, organise their thoughts, identify what matters most, and make consultations more focused and meaningful.
🌺 Visit our website, download the Lupus Consultation Cards, and use them at your next appointment.
www.lupus-europe.org/lupus-consultation-cards/
Because your priorities, questions, and needs deserve a place in every consultation.
Let’s #MakeItCount.
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💜 Thank you to everyone who joined our Youth Group webinar on fertility, family planning & lupus today!
Important conversations like these help tackle fears, misconceptions & unanswered questions around lupus and reproductive health.
🦋 Don't forget to include this topic in the Lupus Consultation cards in your next appointment!
#MakeItCount. Check out this new tool that helps patients prepare for consultations and improve communication with healthcare professionals.
Available in many languages!
📌 Download here:
www.lupus-europe.org/lupus-consultation-cards/
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‼️ It is estimated that about 50% of #SLE patients will suffer from #lupus nephritis, one of SLE's most dangerous & frequent complications.
💊 Routine checkups and available treatments make it possible for 60–70% of patients to achieve complete or partial remission.
#MakeItCount
#WorldLupusDay
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