🦋It's #LupusAwarenessMonth❗
🦵 #KickLupus: make it visible
Take part in the Living With Lupus in 2024 survey.
🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
🧵Find the link for all 21 languages in this thread⤵️
Are you aware of the new recommendations on physical activity and exercise for patients with SLE?
Find out here 👉 https://loom.ly/2S3OoJg
@Lupusreference @mugartegil @IoannisParodis #MedEd #MedTwitter #lupus #RheumTwitter
✅ May is #Lupusawareness month!!! 🦋 Let's spread the word! #Lupus is an #autoimmune disease affecting approximately 3.4 MILLION people in the world 🌎🌍🌏 and is associated with a wide range of #symptoms, some of which are not always visible!
🙏 Si vives en España y no lo has hecho aún, rellena esta encuesta en español de @lupuseurope.
🦋 Necesitamos un buen número de respuestas de pacientes españoles para obtener datos más reales con los q poder trabajar para mejorar la calidad de vida de las personas con #lupus.
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
https://s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and @GruppoLesItalia achieve more answers to ensure that the Italian population is represented in the results
✅ If you have not downloaded 📥 the 2024 #Lupus 'SEMINAR' 🧑🎓 from @TheLancet ⬇️ please keep in mind that this is a temporary (free) link ⏳ provided by the Editor before this moves on to regular download 😉⬇️⬇️⬇️
❗Save the date❗
🤩Lupus Europe is excited to invite you to a unique event on #WorldLupusDay:
🧑💻“Lupus & Youth: A Dialogue between the Lupus Europe Youth Group & a Young Rheumatologist”
📆 10th May
🕖 19:00 CET
‼️ Register now! Send an e-mail to secretariat@lupus-europe.org
📢The call to submit your late-breaking abstracts to #EULAR2024 is open!
🔔Upcoming Deadline: 28 April 2024
Submit your clinical and scientific breakthroughs today👉https://pulse.ly/bwpafhygzd
#eularCONGRESS #EULAR #Rheumatology
♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and Felupus ensure the Spanish population is represented
s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
0 CommentsComment on Facebook
🦋 It's #LupusAwarenessMonth❗
🦵 #KickLupus: make it visible
Take part in the Living With Lupus in 2024 survey.
🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:
1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.
👨💻 We're gathering data to:
🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.
🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨👩👧👦 how lupus affects your daily activities and the strategies you employ to manage it.
🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.
Languages available:
🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8
Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
0 CommentsComment on Facebook
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍️ Responda à pesquisa e compartilhe com sua comunidade.
🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results
s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
#LupusAwarenessMonth
0 CommentsComment on Facebook
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
1 CommentComment on Facebook
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Blandine Raux
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