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    Live Twitter Feed

    Lupus Europe Follow 7,218 4,288

    Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

    LupusEurope
    LupusEurope avatar Lupus Europe @LupusEurope ·
    4h 2041584745511862691

    🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.

    😔 30% of the global population is not able to access essential health services. 

    #StandWithScience  #WorldHealthDay

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    3TR_IMI avatar 3TR-IMI @3TR_IMI ·
    13h 2041440857933381792

    Science works better together. 🔬

    On #WorldHealthDay, #3TR celebrates the power of collaboration. By working across academia, pharma and patients we aim to better understand response and non-response to therapy and make personalised treatment a reality.💡

    #StandWithScience #IHI

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    LupusEurope avatar Lupus Europe @LupusEurope ·
    2 Apr 2039777151256338894

    🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.

    🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.

    In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/

    💜Thanks for your support!

    Image for the Tweet beginning: 🚀 #LupusGPT & #EasyLupus are Twitter feed image.
    Reply on Twitter 2039777151256338894 Retweet on Twitter 2039777151256338894 1 Like on Twitter 2039777151256338894 2 Twitter 2039777151256338894
    LupusEurope avatar Lupus Europe @LupusEurope ·
    30 Mar 2038663629218763213

    🎥 Missed our @SLEuroSociety #ELM2026 Recap Webinar?

    🤩 Watch it now!

    https://www.youtube.com/watch?v=Bw5Iptu-ZNc

    🌟 PAN members share key takeaways, and experts explain the latest on lupus in short, patient-friendly videos.

    More coming soon!

    Image for the Tweet beginning: 🎥 Missed our @SLEuroSociety #ELM2026 Twitter feed image.
    Reply on Twitter 2038663629218763213 Retweet on Twitter 2038663629218763213 1 Like on Twitter 2038663629218763213 3 Twitter 2038663629218763213
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    cristianasieiro avatar Cristiana Sieiro Santos @cristianasieiro ·
    27 Mar 2037494401128095813

    So proud to see #LupusGPT published in @TheLancetRheum

    Huge credit to @LupusEurope Europe for leading such an inspiring, patient-driven initiative 👏

    A privilege to contribute to this work 💜
    🔗

    Image for twitter card

    LupusGPT: an AI-driven information model for patients with systemic lupus erythematosus

    Systemic lupus erythematosus (SLE) is a chronic autoimmune multisystem disease affecting more than 300 000 people in ...

    www.thelancet.com

    Reply on Twitter 2037494401128095813 Retweet on Twitter 2037494401128095813 1 Like on Twitter 2037494401128095813 11 Twitter 2037494401128095813
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    Lupusreference avatar Laurent ARNAUD @Lupusreference ·
    27 Mar 2037441254292644265

    ✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://doi.org/10.1016/s2665-9913(25)00370-4), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://www.lupusgpt.org/

    Reply on Twitter 2037441254292644265 Retweet on Twitter 2037441254292644265 7 Like on Twitter 2037441254292644265 32 Twitter 2037441254292644265
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    Lupusreference avatar Laurent ARNAUD @Lupusreference ·
    26 Mar 2037152697644618179

    ✅ Happy to share that we have just published #LupusGPT... in the Lancet #Rheumatology 👍
    Check the post below by @LupusEurope for the link 🔓

    Reply on Twitter 2037152697644618179 Retweet on Twitter 2037152697644618179 21 Like on Twitter 2037152697644618179 75 Twitter 2037152697644618179
    LupusEurope avatar Lupus Europe @LupusEurope ·
    26 Mar 2037128265907794012

    💥 KABOOM! 

    Our #LupusGPT work is now published in @TheLancetRheum‼️

    🏆 A big moment for LupusGPT, but also for what can happen when patient voice is built in from the start, not added at the end. 

    Free. Multilingual. Valid information on lupus

    https://doi.org/10.1016/S2665-9913(25)00370-4

    Image for the Tweet beginning: 💥 KABOOM! 

Our #LupusGPT work is Twitter feed image.
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    LUPUS EUROPE
    7 hours ago

    🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.

    😔 30% of the global population is not able to access essential health services.

    #StandWithScience #WorldHealthDay #WHD2026
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    🌈 The right to he
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    LUPUS EUROPE
    5 days ago

    🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.

    🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.

    In the meantime, for reliable, multilingual lupus information👉 lupus100.org/

    💜Thanks for your support!
    ... See MoreSee Less

    🚀 #LupusGPT & #Ea
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    LUPUS EUROPE
    1 week ago

    🎥 Did you miss our ELM 2026 Recap Webinar?

    😃 Watch it now on our YouTube channel!

    👉 Our Patient Advisory Network (PAN) members and volunteers share their key takeaways from the European Lupus Meeting 2026.

    👉 Doctors and researchers explain, in a clear, short, and patient-friendly way, key messages from their talks.

    🎯 Click the link below and discover the latest advances in lupus, explained directly by experts:

    www.youtube.com/watch?v=Bw5Iptu-ZNc

    More insights from #elm2026 coming soon. Stay tuned!
    ... See MoreSee Less

    🎥 Did you miss ou
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    LUPUS EUROPE
    2 weeks ago

    We are very proud to share that LupusGPT has now been published in The Lancet Rheumatology, one of the world’s leading medical journals in rheumatology.

    For us, this is not only about a publication. It is about what LupusGPT stands for.

    LupusGPT is free. It is patient-led. And it was built to help people living with lupus find reliable, accessible information in almost any language.

    It began with a simple but important question: what could become possible if patients, clinicians, and digital experts truly worked together from the start?

    That question was first opened up in a fishbowl discussion at the European Lupus Meeting 2024 on how the lupus community could get the best, but not the worst, out of AI. From there, LupusGPT was shaped through the care, intelligence, and effort of many people: volunteers, patient testers, clinicians testing across languages, people who gave feedback, and people already helping us share it with patients in clinics, organisations, and communities.

    This publication matters because it shows that patient-led innovation belongs in the scientific world too. It shows that when patient voice is not added at the end, but built in from the start, something real can grow.

    A heartfelt thank you to all authors: Zoe Karakikla-Mitsakou, Alain Cornet, Jeanette Andersen, Sarah Dyball, Cristiana Sieiro Santos, Daniel Guimarães de Oliveira, and Laurent Arnaud. Special thanks also to Daniel Guimarães de Oliveira for the thought, care, and belief he brought to this work, and to Professor Laurent Arnaud for his outstanding support, steadiness, and guidance.

    And above all, thank you to everyone in the Lupus Europe community who keeps showing us why this matters.

    LupusGPT. Free. Multilingual. Patient-led. And now part of the scientific record.

    doi.org/10.1016/S2665-9913(25)00370-4

    Read it for free now! You only need to register (registration is completely free and takes 1')
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    We are very proud to
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