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🎥 Our Chair, @Jeanette_Lupus, explains at #EULAR2026 what #LupusGPT is and why reliable, understandable #lupus information matters.
Watch the full interview:
https://www.youtube.com/watch?v=plqZt7J142I
Thank you @eular_org for giving space to patient-led innovation on EULAR TV!
📣Don’t forget!
Our #EULAR2026 Recap Webinar is coming up on June 15 at 19:00 CET,
Learn some key highlights from one of our most exciting congresses in recent years, including scientific insights brought directly by speakers through short videos.
📩 Register now! email
🦋What an amazing second day at #EULAR2026!
A 🔝 day for Lupus Europe, with Zoe presenting #LupusGPT & our local patient panel work, and @Jeanette_Lupus speaking about non-pharmacological treatment & co-chairing.
Read our day 2 recap https://www.linkedin.com/feed/update/urn:li:activity:7470063565056610305
🦋 Last week at #EULAR2026, Lupus Europe covered key lupus-related sessions, posters & discussions through our PAN and Board members.
From fatigue to Sex & Lupus, SDH, digital tools & patient communication, you can read the full recap here: https://www.linkedin.com/feed/update/urn:li:activity:7468236374270291968
🤩 #EULAR2026 has been a blast!
Now it’s time to look back at some of the key lupus-related insights, data & messages from this year’s Congress.
Join us for our @eular_org recap webinar!
📅June 15
🕖 19:00 CET
✅ To register, email secretariat@lupus-europe.org
Don’t miss it!
🤩 What an amazing #EULAR2026!
Congratulations to @eular_org and the whole team for the 🔝 organisation and speaker line-up.
We leave London happy & proud of Lupus Europe’s contribution this year, from patient-led research to #LupusGPT & the patient voice across sessions.
See
Our Swiss Knife Survey found that fatigue affected 84.9% of respondents and was reported as the symptom least taken into account in treatment plans.
Read the study:
#EULAR2026

Excellent Abstract sessions on Diagnostic Tools in Lupus 🦋
#EULAR2026 #lupus @LupusEurope
This is exactly the gap highlighted in the recent publication by Dr @gomezg_alvaro and our General Secretary, Zoe Karakikla-Mitsakou.
In 55.3% of visits, patient and physician assessments were discordant. Even in DORIS remission, over 1/3 of patients still rated their disease as

⭐ Highlights from the #EULAR2026 PARE Sessions
“The rheumatologist sees remission. The patient still sees disease.”
Perhaps the future of personalised medicine starts by closing that gap.
⏰ Just 1 hour left for our #EULAR2026 highlights webinar!
😨 You haven't registered yet? Don't worry! We have great news for you!
✅ You can still catch all the insights live on our Facebook page www.facebook.com/LupusEurope
Join us at 19h CET to explore key takeaways from the Congress!
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🌟Our #EULAR2026 highlights webinar is tomorrow!
👨⚕️Some of the presenters will share key takeaways from their talks in short videos.
🦋 Also, some of our PAN members will share their insights from the Congress.
Don’t miss this opportunity!
✉️ Register now by sending an email to secretariat@lupus-europe.org
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🎥 Last week, during #EULAR2026, the Chair of Lupus Europe's Board of Directors, Jeanette Andersen, was interviewed on EULAR TV about #LupusGPT.
Watch as she explains what #LupusGPT is and why reliable, understandable lupus information is important for patients and for lupus care.
🦋 #LupusGPT is patient-led, built with clinicians, patients and IT experts, and grounded in trusted lupus resources.
#LupusGPT is not a replacement for healthcare professionals, but it helps people better understand lupus information and prepare more informed questions for their physicians.
📺 Watch the full interview on the EULAR YouTube channel:
www.youtube.com/watch?v=plqZt7J142I
Thank you EULAR for giving space to patient-led innovation on EULAR TV!
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📣Don’t forget!
Our #EULAR2026 Recap Webinar is coming up on June 15 at 19:00 CET,
Learn some key highlights from one of our most exciting congresses in recent years, including scientific insights brought directly by speakers through short videos.
📩 Register now! email secretariat@lupus-europe.org
... See MoreSee Less
0 CommentsComment on Facebook
Welcome to Lupus Europe. To join our pan-European community, please contact us.

Info Center: https://www.lupus-europe.org/me-lupus/lupus-europe-info-center/
Survey Center: https://www.lupus-europe.org/me-lupus/lupus-europe-survey-center/
Blog: https://www.lupus-europe.org/blog/
Videos: https://www.lupus-europe.org/videos-on-demand/
Facebook: https://www.facebook.com/LupusEurope
Twitter: https://twitter.com/LupusEurope