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Dear Members and Friends,
As we welcome the vibrant days of spring, Lupus Europe is thrilled to bring you exciting updates, initiatives, and opportunities designed to strengthen our community and support those affected by lupus.
We are excited about the upcoming EULAR 2025 Congress in beautiful Barcelona from June 11-14. EULAR 2025 promises to be a hub for groundbreaking research in rheumatic and musculoskeletal diseases, including Lupus. Registration is now open—register to join this incredible gathering of experts and advocates.
EasyLupus, the simplified language version of our innovative AI tool, LupusGPT, is also live! Designed to provide medically valid information in a language that’s even easier to understand, EasyLupus offers answers in almost all languages. It provides answers in simpler language, making lupus-related information more accessible for everyone, especially those who struggle with medical terms or severe brain fog.
We are equally excited to share that Lupus100.org continues to expand, now available in 17 languages and endorsed by leading lupus experts. This growing multilingual platform is making essential lupus information more accessible than ever for patients.
The Lupus Europe Youth Group has been working on many projects! One of those projects is a webinar; Lupus and Sex: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist. This important conversation will tackle the unique challenges of navigating lupus and sexuality, especially for young adults. The webinar will take place on Friday, May 3rd at 19:00 CET! Join us for this vital discussion!
But we also have another webinar for you! For the past three years, members of the Lupus Europe Patient Advisory Network (PAN) have been working with AstraZeneca on a project on the challenges in lupus care and treatment. We are thrilled to share some of the key outcomes of this collaboration in an upcoming webinar on March 31st at 18:00 CET. The session will be moderated by Jeanette Andersen, Lupus Europe Chair, and will feature nurse Susanne Pettersson, Prof. Marta Mosca, and Elfriede Wisjma, Lupus Europe Vice Chair and PAN member.
Lastly, read about the Lupus Europe Capacity Building Programme, which offers funding opportunities for projects aimed at enhancing member engagement and support within national lupus groups.
With spring’s renewal, let’s further nurture hope, action, and connection within the European lupus community.
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Warmly,
On behalf of the Board of Directors,
Jeanette Andersen
Chair of Lupus Europe
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EULAR 2025
Barcelona 11-14 June 2025
From June 11 – 14 the Annual EULAR Congress will take place in Barcelona, Spain. By joining you can learn about the latest scientific research within rheumatic and musculoskeletal diseases (RMDs) which also covers lupus. Registrations are open, just click bellow!
Click to register for EULAR 2025
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Introducing EasyLupus: Making lupus information even more accessible
Following the success of LupusGPT, Lupus Europe is excited to also announce EasyLupus—an easy read version of the AI tool, designed with simpler language for easier comprehension. While LupusGPT provides medically valid answers based on a curated library of information on lupus, EasyLupus presents that same information in a way that’s easy to understand for everyone, even people who struggle with medical terms or those struggling with severe brain fog due to lupus.
Accessible in the same languages as LupusGPT, EasyLupus uses simpler language and shorter answers, completely avoiding medical jargon to ensure patients of all ages and backgrounds can easily engage with the information they need.
To learn more or to try EasyLupus, visit: https://easy.lupusgpt.org/
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What tips are there for using EasyLupus?
• The AI will respond in the language in which the question is asked.
• If EasyLupus does not provide answers to certain questions, try slightly rephrasing the
question.
• If EasyLupus does not have the answer to a specific question, it will let you know and will not give an inaccurate response.
• If you have any feedback on EasyLupus, just let us know
Go to https://easy.lupusgpt.org/ or scan the QR code to access the tool
If you have any feedback on EasyLupus, e-mail: secretariat@lupus-europe.org and let us know how it worked for you, in your language!
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Lupus100 is expanding!
Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also been endorsed by ERN ReCONNET SLE Working Group doctors.
Lupus100.org is continuously expanding. With another recent language addition in Czech, Lupus100.org is now available in 17 European languages. Translations are validated by native speaking patients and rheumatologists specialised in lupus.
As a result, it is a unique, free of charge, reliable and accessible source of information on lupus.
- Visit the website to be convinced!
- Spread the news about Lupus100
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Lupus Europe Capacity Building Programme
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In 2020, Lupus Europe launched the Capacity Building Programme to support its National Members with additional funding for projects that strengthen their work within the lupus community. This initiative aims to help national organisations better engage with their members and improve overall communication and support.
Eligible Projects:
To apply for funding, a project should meet the following criteria:
Future-Oriented: The project should not have already started or been completed.
Focus Areas: The project should aim to improve member engagement or enhance the resources available to your national group. Examples include:
Translating and distributing lupus-related informational materials (leaflets, brochures, etc.) in your local language.
Organising events for your members (either online or in person) that are currently out of reach due to funding limitations.
Upgrading or creating a website or improving your digital presence.
If your organisation has a project that could benefit from extra funding, we encourage you to apply!
How to Apply:
To apply, simply email us with details about your project. The Lupus Europe Board of Directors will review each application.
For any questions on the programme or to submit your application, please contact Annemarie Sluijmers at: annemarie@lupus-europe.org
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We are excited to invite you to the upcoming webinar:
Lupus and Sex: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist
Date: Saturday, May 3rd
Time: 19:00 CET (i.e. Paris time)
Who: Dr. Cristiana Siero Santos & Members of the Lupus Europe Youth Group
This important webinar will allow for an honest dialogue around an often-overlooked topic, exploring the unique challenges of navigating lupus and sexuality, especially as a young adult. Join us and get answers to questions many young (and not so young!) people with lupus may have on this topic.
To register, simply email: secretariat@lupus-europe.org
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Upcoming Webinar: Patient Charter
For the past three years, members of the Lupus Europe Patient Advisory Network (PAN) have been working closely with AstraZeneca on the challenges in lupus care and treatment. We are excited to share some of the outcomes of this project in an upcoming webinar.
Join us on March 31st at 18:00 CET to explore some of the key outcomes in a webinar, moderated by Jeanette Andersen, Chair of Lupus Europe. The panel will also feature Research affiliate & Docent in Nursing Susanne Pettersson, Prof. Marta Mosca, and Elfriede Wisjma, Lupus Europe Vice Chair and PAN member.
To register, just email: secretariat@lupus-europe.org.
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Lupus Europe Annual Convention 2024
The Lupus Europe Annual Convention 2024 took place in Bratislava, Slovakia 18-21 October.
From the evening of the 18th of October, the Lupus Europe Annual Convention 2024 was held in the historic city of Bratislava, Slovakia. The Annual Convention, an event specifically for Lupus Europe National Member Delegates, was focused on the theme of Mental Health and lupus.
This year the Convention was preceded by two special Pre-Convention events; a day for Men with Lupus and a meeting of the Lupus Europe Youth Group.
Do you want to find out more about the Lupus Europe Convention 2024? Read the Convention Report: click here to read the convention report
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