all the latest news

January 2023

Dear Members and Friends,

I hope you and your loved ones have had a good holiday season and have entered into the new year in good health, with renewed energy and a positive spirit.

Although 2022 has been a difficult year for many it has also brought an end to most Covid-19 restrictions and for people with lupus it has brought hope in the form of several new products on the market. We hope and expect to see even more positive results in 2023.   
A new year has begun and for Lupus Europe it has already started in a very positive way with the most joyful news. As of January 1st, Sara Badreh officially started in the position as our new PAN Coordinator.

As some of you will remember, Sara was a trustee on the Board of Lupus Europe some years ago and we are very glad to be able to welcome her back into the family. We are looking forward to a great collaboration in the years to come. Sara is a wonderful person and has many good qualifications (apart from being a lupus patient herself) but I will leave it to Sara to introduce herself.

With wishes of a great year 2023,
On behalf of the Board of Directors,
Jeanette Andersen
Chair of Lupus Europe

what is happening


new PAN Coordinator

Sara Badreh is a biochemist by education who after spending some years conducting research in the field of immunology at the Karolinska Institute in Stockholm, Sweden moved to Brussels to work in Policy and Advocacy.

She is a lupus patient herself and was diagnosed at the age of 16 and is very passionate about patient advocacy and how to best link the patient needs with the scientific perspective.

After giving birth to her first son, Elias, she started her own consultancy helping organisations with the management of multi-stakeholder projects at EU level.

She might be a familiar face to some of you since she previously was part of the Lupus Europe board of trustees.

Fun fact, during 2019 she ran the 5-borough series in New York to show that lupus patients can do anything they set their minds to. The 5-borough series is a series of races where you run all the 5 boroughs in New York during one year which includes 3 half-marathons, one 16 km and one 10 km races. 

what is coming!

The 34th Annual Lupus Europe will take place in Lisbon from April 28th until May 1st.
Invitations with details on the programme and information on how to register will be sent out to National Member Groups and Active Volunteers very soon!

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LUPUS EUROPE Uniting people with Lupus throughout Europe