Lupus Europe Webinars

Watch this Lupus Europe webinar titled “European Lupus Meeting (ELM) 2024 Debrief, as viewed by Lupus Europe’s PAN Members” to get the latest news and feedback from ELM 2024 from a doctor and patient’s perspective, in lay language.

ELM 2024 Debrief, as viewed by Lupus Europe's PAN Members

2nd Patient Panel on Youth

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European Lupus Meeting 2022

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Volunteer Testimonials

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Lupus Europe Convention in the Clouds 2021

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Lupus Europe Convention in the Clouds 2020

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EXERCISE PROGRAM for Lupus Patients

Lupus Europe • EXERCISE PROGRAM for Lupus Patients • INTRO
LUPUS EUROPE • EXERCISE PROGRAM for LUPUS PATIENTS In collaboration with trained physical therapists Lupus Europe has developed an exercise program in five levels which has been endorsed by leading European Lupologists. Studies show, that the only thing, that is clinically proven to help lupus fatigue is “moderate” exercise. We as lupus patients ourselves do however realise, how difficult it can be to start exercising, when you feel fatigue! This is why we developed this program from our own experiences. Exercise doesn´t necessarily mean, that you have to run a marathon or go to the gym. With this program we want to show, that you can do it no matter where you are and how you are feeling. You should be able to find a level that suits you each day. The goal is of course to increase in level whenever you can, but you will probably experience, that you have to go down a level at some point. Don´t despair, this is quite normal, and the most important thing is, that you do one exercise a day – not which level it is. Who knows - you might even feel so energized by doing one program, that you can take on the next level straight away…? All exercises can be done without training tools and in the individual videos we will guide you through the various options for increased or reduced difficulties. Each program can be done in 15-20 minutes, if you do two or three rounds.
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #1
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #2
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #3
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #4
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #5
Jan 28, 2020
KICK LUPUS 2019 • Winner • Andrealara's Video

Kick Lupus

Lupus makes you understand which are the moments you can be happy and makes you enjoy these moments more than anyone else could ever do, because nobody can understand what it means to renounce something because your body can’t make it, and this is why we “fully live all our
experiences”.

Lupus Europe ANSWERS

MY LIFE with Lupus Europe

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Lupus Europe STRATEGIES

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15 hours ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍️ Responda à pesquisa e compartilhe com sua comunidade.

🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

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1 CommentComment on Facebook

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3 days ago

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌 A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Don't miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️
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📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

 🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌  A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Dont miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️

1 CommentComment on Facebook

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7 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results

buff.ly/3xGBU6T
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