About Zoe
Since joining the organisation in 2020, Zoe has helped support a growing body of work at the intersection of patient voice, science, and practical change for people living with lupus across Europe.
Living with lupus, antiphospholipid syndrome, and other rare conditions herself, Zoe brings both lived and professional experience to her work. She is particularly interested in how patient insight can be built in from the start, not added at the end, and in how collaboration between patients, clinicians, researchers, and other stakeholders can lead to work that is both rigorous and genuinely useful.
Within LUPUS EUROPE, Zoe leads or supports a wide range of initiatives, from day to day operations to scientific collaborations, and new projects such as LupusGPT, a multilingual patient-led AI tool designed to provide free, accessible, reliable lupus information. A recurring thread in her work is the wish to help translate complexity into something clearer, more human, and more usable for patients.
Zoe is also a Fellow in the Lupus Europe Patient Advisory Network (PAN), a group of trained patient representatives working with the scientific and medical community on research. In addition, she is an ePAG representative for SLE within ERN ReCONNET.
Zoe is especially drawn to work that is careful, collaborative, and transferable, work that can hold complexity without losing clarity, humanity, or usefulness, and that helps create models, tools, and ways of working that others can build on too.
