We have created this blog to keep you up to date with the latest news and happenings in Lupus Euorpe.
We hope you enjoy reading it.
We have created this blog to keep you up to date with the latest news and happenings in Lupus Euorpe.
We hope you enjoy reading it.
UV light could cause a flare➡️ it is advisable that patients avoid it.
Always wear 🌞protection when outdoors.
Even though skin manifestations may appear more frequently on the face, protective measures should be applied to all exposed areas
https://buff.ly/3vptgJ8
#WORDDAY2024
💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management.
🏃♀️Did you know exercise has been shown to improve SLE symptoms like #fatigue?
More at #Lupus100 https://buff.ly/3PnE8hD
Also, follow our exercise programme!
#WORDDAY2024
💜Today is #WORDDay2024 !
It is the occasion to deep into the journeys of young people facing #RheumaticDiseases. Hear their stories of struggles, challenges, and successes
➡️https://ern-rita.org/world-young-rheumatic-disease-day-word-day-2024/
#Lupus might sound scary at first, but the diagnosis doesn't mean your child will not be able to have a normal life.
Talk to your doctor about infection prevention & self-care measures.
Find reliable information on #Lupus100 http://www.lupus100.org in your language
#WORDDAY2024
🎙️ Tune in to our latest PAED podcast to raise awareness for #WORDDay2024!
Join us on a journey of understanding and empathy as we discuss the transition from childhood to adulthood for individuals RMDs.
👉https://pulse.ly/srzyskrp7p
#WORDDay2024 #RMDs
😰The moment your child is diagnosed may be overwhelming for you. This can go away with time & access to the✅ information like http://www.lupus100.org
Remember: it is impossible to learn everything about #lupus overnight! Your child's Dr is the best source of ℹ️
#WORDDAY2024
Today is World Young Rheumatic Diseases Day - an awareness day for young #Lupus, #MultipleSclerosis & #rheumatoidarthritis #patients❗️
Learn more about #3TR research into these disorders:
👉 https://www.3tr-imi.eu/research/diseases/chronic-autoimmune-diseases
About #WORDDay2024:
👉 https://wordday.org/
#SLE #MS #RA
Symptoms of #lupus in children are the same as in adults, including:
👉 Low grade fever for no apparent reason
👉 Fatigue
👉 Joint pain
👉 Butterfly rash
👉 Sores in the mouth or nose
👉 Weight loss
Raising awareness of the symptoms is key for an early diagnosis
#WORDDAY2024
🚨 Today is #WORDDay2024! which stands for WOrld Young Rheumatic Disease Day.
🌍 Through this global event we can spread the word that children and young people get rheumatic diseases like lupus too.
‼️ It is estimated that around 15-20% of #Lupus patients are children, although it is rare that a child develops lupus before 5 years of age.
As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.
🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.
😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.
👉 Remember: it is impossible to learn everything about #Lupus overnight! Your child's doctor is the best source of information.
Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.
📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.
🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!
Turn to your lupus association for support.
🤗 There are many organisations across Europe that can help you and your child cope with the disease.
More information on #SLE in children at #Lupus100: lupus100.org/en/questions/can-lupus-affect-children
For more information on #WORDDay2024 you can visit World Young Rheumatic Diseases Day - WORD Day
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🔴 Tomorrow is #WORDDAY2024!
🦋 And we will be sharing tips and information on how #lupus can affect children.
Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.
More information on lupus in children at #Lupus100 (14 languages):
lupus100.org/en/questions/can-lupus-affect-children
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🔊 Raise global awareness about the significant impact of skin conditions like #Lupus and skin lupus.
🦋 Join the movement: It's about our Skin, but it's also about our lives 🌟📢 #NotJustMySkin buff.ly/3IFxcZC
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🔴 Although lupus nephritis remains one of the most serious complications for SLE patients, early diagnosis and adequate treatment make remission possible in many cases ✅.
🦋 Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:
1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure
Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶♂️ 🏃♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take the appropriate fluid intake
6️⃣ Don't take NSAIDs regularly
#WorldKidneyDay
#KidneyHealthforAll
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Welcome to Lupus Europe. To join our pan-European community, please contact us.
Info Center: https://www.lupus-europe.org/me-lupus/lupus-europe-info-center/
Survey Center: https://www.lupus-europe.org/me-lupus/lupus-europe-survey-center/
Blog: https://www.lupus-europe.org/blog/
Videos: https://www.lupus-europe.org/videos-on-demand/
Facebook: https://www.facebook.com/LupusEurope
Twitter: https://twitter.com/LupusEurope