LUPUS EUROPE MEMBERS
LE MEMBERS
LUPUS EUROPE MEMBER ORGANISATIONS
Liga voor Chronische
Inflammatoire Bindweefselziekten vzw
Ingrid Hennes
Lupus Cyprus – Cyprus League of People with Rheumatism
Marios Kouloumas
✅ Genomic versus non-genomic effects of #glucocorticoids in #lupus
Full download link: https://doi.org/10.1016/j.jbspin.2020.03.008
✅ YES WE CAN ⬇️ 👍
✅ YES WE SHOULD ⬇️ 👍
#Lupus #Qualityoflife #Corticoids
#CORA2023 @autoimmunitymd https://twitter.com/Lupusreference/status/1635534131198152706
✅ It is possible to STOP corticosteroids when treating systemic #Lupus ⬇️
What do YOU think?
#CORA2023 @autoimmunitymd
✅ Today is the start of #CORA2023, with many controversies about inflammatory and #autoimmune diseases such as #lupus, including the optimal management for lupus #nephritis, whether it is possible to stop corticoids in #SLE, the risk of severe infections ⬇️ etc...
💊 Adherence is key!
‼️ If you missed this fantastic @ern_reconnet webinar, stay tunned! We will be sharing the link to watch it again soon!
Low #adherencetotherapy is like an elephant in the room: everyone knows but it is difficult to talk about it. Today with @iaiaraia and @CoBouillot during our @ern_reconnet webinar we explored some challenging aspects of #adherence in #chronicdiseases . #EuropeanReferenceNetworks
🚨 Don't miss this seminar on "2023 Challenges in SLE" organised by GlomCon which will have Prof. Laurent Arnaud as a speaker.
📅 Tomorrow, at 16h CET (i. e. Paris time).
You can attent the event via Zoom by clicking this link:
glomcon.zoom.us/j/87550771266?pwd=WGphM3dWL3dPVG4rYjdYL21ZYktEZz09
If you are in a different timezone, you can check the time here: buff.ly/426JOkI
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Tomorrow?
Do you know what a #lupus timeline is?
It was one of the many exercises we did during our Senior Panel in Barcelona.
Have you done yours? It can be very helpful when it comes to telling your medical record to a new doctor!
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Many lupus patients also have Sjögren's Syndrome.
If you have a first-degree relative with Sjögren's syndrome, please complete this survey, which is available in 14 languages.
Thank you in advance on behalf of Dr Aessia Alunno and the research team!
www.soscisurvey.de/firstdegreerelatives/
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Welcome to Lupus Europe. To join our pan-European community, please contact us.
Info Center: https://www.lupus-europe.org/me-lupus/lupus-europe-info-center/
Survey Center: https://www.lupus-europe.org/me-lupus/lupus-europe-survey-center/
Blog: https://www.lupus-europe.org/blog/
Videos: https://www.lupus-europe.org/videos-on-demand/
Facebook: https://www.facebook.com/LupusEurope
Twitter: https://twitter.com/LupusEurope