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✅ Happy to report that we have completed STEP 2 of the ReCONNET / SLICC / SLEuro recommendations for rare #LUPUS manifestations 👍 Together, the members of the expert panel have selected 🔎 by consensus 21 of 45 rare #SLE manifestations ⚡ which will move forward to step 3 🎯
"Glucocorticoids: Tapering to zero?"#Lupus2024. Hot topic, excellent discussions with our Fishbowl panelists Luis Ines, Margherita Zen, @LupusEurope chair @Jeanette_Lupus and many participants with great comments @AliDuarteMD, @mugartegil, @AnaMalvar, @TroldborgAnne
Assessment of the effectiveness of BELI in RWD in a Spanish multicenter cohort led by @irealt2 @PegoReigosa & several members from @SEReumatologia
Important rates of remission & LLDA
GC-sparing effect
Prevention of flares & organ damage
#lupus
@RheumJnl
✅ SAVE THE DATE ⏰ 👍
for the 15th European #Lupus Meeting by @SLEuroSociety
Lisbon 4-7 March 2026
✅ It was a pleasure to welcome each one of you at the 2024 European #LUPUS Meeting #LUPUS2024 #ELM24 by the @SLEuroSociety 👌 If you are not yet a member 🧑🎓 you can register (for free!) and gets update about 2026 Lisbon at https://sleuro.org/membership/
#Lupus2024 has come to an end! Thanks to the organisers for such a wonderful event and to @SLEuroSociety.
The strong patient participation this year was a real step change which we hope will not only continue, but strengthen in the future!
See you in #Lupus2026 in Lisbon!
✅ #LUPUS2024
'THE GREAT DEBATE'
Petri vs Insenberg
Will a majority or a minority of #Lupus patients require use of #biologics?
The elections of the SLEuro Executive Committee for 2025-2026 have been closed this morning during the General Assembly.
Join the Closing Ceremony of this Lupus Meeting at 12:30 in the Concert Hall to discover the eight future members of this Society!
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🌟🦋 SAVE THE DATE: 𝗟𝘂𝗽𝘂𝘀 𝗘𝘂𝗿𝗼𝗽𝗲❜𝘀 𝗘𝗟𝗠 𝗥𝗲𝗰𝗮𝗽 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 🦋🌟
🔎 Are you eager to explore the insights and experiences shared at the European Lupus Meeting #lupus2024?
🤩 We've got you covered!
👩💻 Join us for an exclusive webinar that will bring together the leading experts and patient voices from the 14th European Lupus Meeting.
📅 Date: 4th of April
⏰ Time: 19:00 CET (Paris time)
🔗 Registration: Click the link in our bio!
🚨 This is your chance to hear firsthand the highlights and breakthroughs from the specialists themselves, alongside the invaluable perspectives of patients who attended the event.
Whether you're a patient, a caregiver, or a medical professional, this webinar promises to enrich your understanding of lupus and its latest advancements.
🏃♂️ Secure your spot now by sending an e-mail to zoe@lupus-europe.org and be part of this enlightening session!
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🎉 The 14th European Lupus Meeting #Lupus2024 will kick off in a few minutes!
🌟 As we shared this morning, Lupus Europe has played an important role in this meeting, with four of our members having the honour of serving on the International Scientific Committee.
This collaboration reflects the commitment to increased patient participation, showcasing Lupus Europe's significant involvement and covering a range of patient-exciting topics like lupus in men and the impact of economic factors on lupus.
✅ Highlighting today's Opening Session at 18:40 CET is Lucy Scarle's anticipated presentation, "Improving communication between lupus patients and physicians".
lupus.bmj.com/content/11/Suppl_1/A1.1
Drawing from the collective effort and experiences of Lupus Europe's Patient Advisory Network, Youth Group, and Board, Lucy's talk aims to illuminate the nuances of patient-physician interactions, offering actionable insights to enrich these conversations.
🦋 The presentation promises to be an invaluable exploration of the lupus patient journey, from the complexities of receiving a diagnosis to navigating the ongoing challenges of living with lupus.
💁♀️ Lucy will delve into how a diagnosis can evoke a spectrum of emotions, the thirst for reliable information at every stage, and the critical importance of adherence to treatment regimens. She'll also touch on sensitive yet significant topics such as pregnancy, lifestyle choices, and the impact of lupus on mental health, underscoring the necessity of a holistic, empathetic approach to care.
🙌 Lucy's session is set to highlight the transformative power of effective communication in improving patient outcomes and fostering a more understanding, patient-centered healthcare environment.
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🚨 Today is #WORDDay2024! which stands for WOrld Young Rheumatic Disease Day.
🌍 Through this global event we can spread the word that children and young people get rheumatic diseases like lupus too.
‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age.
As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.
🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.
😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.
👉 Remember: it is impossible to learn everything about #lupus overnight! Your child's doctor is the best source of information.
Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.
📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.
🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!
Turn to your lupus association for support.
🤗 There are many organisations across Europe that can help you and your child cope with the disease.
More information on #SLE in children at #Lupus100: lupus100.org/en/questions/can-lupus-affect-children
For more information on #WORDDay2024 you can visit World Young Rheumatic Diseases Day - WORD Day
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Welcome to Lupus Europe. To join our pan-European community, please contact us.
Info Center: https://www.lupus-europe.org/me-lupus/lupus-europe-info-center/
Survey Center: https://www.lupus-europe.org/me-lupus/lupus-europe-survey-center/
Blog: https://www.lupus-europe.org/blog/
Videos: https://www.lupus-europe.org/videos-on-demand/
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