Member's groups

  • Group logo of PAN and VOLUNTEERS
    active 4 years, 3 months ago

    Thank you for Volunteering to support LUPUS EUROPE. It is thanks to Patient Engagement that we can deliver our mission. this group is a platform to interact with volunteers, letting you know what specific projects […]

    Private Group / 22 members
  • Group logo of Liverpool 2019 Presentations & Materials
    active 4 years, 3 months ago

    Dear Lupus Europe 2019 Convention participant,

    On this page, you will find all materials related to the Lupus Europe 2019 convention and council session.  It could be that some files are still missing if we […]

    Private Group / 35 members
  • Group logo of Kick Lupus
    active 5 years, 5 months ago

    The Kick lupus team is a project task force that will seek to launch cross border initiatives to ”kick lupus” further away. The initial focus of the campaign will be to energize people living with lupus to move, […]

    Private Group / 4 members
  • Group logo of Message Tracks
    active 5 years, 6 months ago

    The Message tracks workgroup is a project team that will seek to design our priority messages for each of our target groups, as well as tghe supporting arguments. Those messages will then be put at disposal of our […]

    Private Group / 8 members

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
10 hours ago

Tässä Lupus Europen kysely, vastauksia toivotaan myös miehiltä. Vastausaikaa on tiistaihin 30.4. asti
s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
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10 hours ago

Drogie Motylki, 🦋🥰

mamy do Was prośbę o wypełnienie ankiety LUPUS EUROPE.

👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u

Udział w tego typu ankietach ma wpływ na badania, zatwierdzenie leków, praktyki lekarskie oraz na publikacje naukowe wyników, które są cytowane w różnych artykułach w czasopismach medycznych.
Dzięki poprzedniej dużej ankiecie powstał lupus100.org

Dlatego bardzo prosimy o poświęcenie kilku minut na wypełnienie ankiety. Dzięki temu, mamy wpływ na to, co dla nas jest najważniejsze.

👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u

#lupuspoland #lupuseurope #ankieta #toczeń #sle
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LUPUS EUROPE is conducting a survey to gather insights into the experiences of individuals living with #lupus across Europe.

🌍 In 2020, Lupus Europe launched a large “Living with lupus survey”. Thanks to the huge participation from patients around Europe, the insights from this survey are largely used. Time has now come for a new survey, with different topics, to add to our knowledge of what it means to live with lupus in 2024.

👤 The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages.

🔗 Click the following link to complete the survey: www.surveylegend.com/s/5h8u

Thank you for sharing your views!

#LupusAwareness #LupusResearch #SLE #LupusCommunity
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