Members

The members of LUPUS EUROPE are the national and other properly-accredited Lupus Groups in Europe.

At this moment there are 20 countries with 22 organisations and about 35,000 patients represented.

Following international contacts of these organisations are at your disposal for any information you may need about their activities in their respective country:
Belgium (Flemish) 
CIB-Liga vzw
Nele Caeyers

Tel.: +32 14 32 23 99
Fax: +
Email: nele@reumanet.be

Belgium (French) 
Association Lupus Erythémateux
Ioannis Kroustalis

Tel.: +32 498 976 337
Fax: +
Email: vice-president@lupus.be

Cyprus 

Αντιρευματικός Σύνδεσμος Κύπρου

Josephine Josef Stylianou

Tel.: +35 722 42 82 85
Fax: +35 722 42 82 88
Email: cyplar@cytanet.com.cy

Denmark 
Lupus DK / Gigtforeningens diagnosenetværk for SLE
Tove Cassøe

Tel.: +
Fax: +
Email: tove@cassoee.dk

Finland 
SLE-ryhmä
Jaana Hirvonen

Tel.: +35 89 47 61 5601
Fax: +35 89 64 22 86
Email: jaana.hirvonen@reumaliitto.fi

France (AFL+) 
Association Française du Lupus et autres Maladies auto-immunes AFL+
Marianne Rivière

Tel.: +33 87 64 31 87
Fax: +33 6 86 46 3406
Email: riviere.marianne@wanadoo.fr

France (LUPUS France) 
Lupus France
Ginette Volf-Philippot

Tel.: +33 1 45 26 3327
Fax: +33 6 07 35 4869
Email: presidente@lupusfrance.fr

Germany 
Lupus Erythematodes Selbsthilfegemeinschaft e.V.
Simone Müller-Pretis

Tel.: +49 931 260 20 89
Fax: +49 931 27 52 68
Email: simone.mueller-pretis@lupus-rheumanet.org

Hungary 
Magyar Lupus Egyesület
Gábor Varga

Tel.: +36 30 341-3991
Fax: +
Email: gabor@lupusz.hu

Iceland 
KJARNINN, áhugahópur um Lupus
Laufey Karlsdóttir

Tel.: +35 4564 45 53
Fax: +
Email: laufey@gn.is

Ireland 
Cumann Cabhrach Lupus na hEireann
Mary Feehan

Tel.: +35 31 493 19 88
Fax: +
Email: desfeehan@eircom.net

Italy 
Gruppo Italiano per la lotta contro il lupus eritematoso sistemico
Augusta Canzona

Tel.: +39 06 451 53 40
Fax: +39 06 451 53 40
Email: lupusroma@virgilio.it

Malta GC 
Lupus Support Group Malta
Prof. Dr. Dion Buhagiar

Tel.: +35 621 435647
Fax: +35 621 418008
Email: dion.buhagiar@um.edu.mt

Netherlands 
Nationale Vereniging LE Patienten
Ineke Boomker

Tel.: +31 40 262 35 09
Fax: +
Email: sj.boomker@hetnet.nl

Norway 
LUPUSGRUPPEN i NRF
Fatima Maria Lavoll

Tel.: +47 233 490 81
Fax: +47 917 74 731
Email: convention@lupus-europe.org

Portugal 
Associação de Doentes com Lupus
Rosa Maria Gonçalves 

Tel.: +35 121 330 36 40
Fax: +35 121 314 62 16
Email: rosacgoncalves@iol.pt

Romania 
Asociata LES Romania
Sorana Dinvale

Tel.: +40 7 24511221
Fax: +
Email: soranatm@yahoo.com

Slovenia 
Društvo revmatikov Slovenije
Dominika Naveršnik

Tel.: +38 65 90 75 366
Fax: +38 12 36 24 57
Email: drustvo@revmatiki.si

Spain 

Federación Española de Lupus
Blanca Rubio

Tel.: +34 952 25 08 26
Fax: +34 952 25 08 26
Email: presidencia@felupus.org

Sweden 
Rheumatikerförbundet, Systemiska Sjukdomar
Greta Thorén
Eida Steen

Tel.: +46 705 821884
Fax: +
Email: greta.thoren@reumatikerforbundet.org

Switzerland 
Schweizerische Lupus Erythematodes Vereinigung (SLEV)
Britta Krismer

Tel.: +41 44 930 33 64
Fax: +
Email: b.r.y.krismer@bluewin.ch

United Kingdom 
LUPUS UK
Yvonne Norton MBE

Tel.: +44 1902 49 82 36
Fax: +44 1902 49 82 36
Email: chair@lupus-europe.org