Members

The members of LUPUS EUROPE are the national and other properly-accredited Lupus Groups in Europe.

At this moment there are 20 countries with 22 organisations and about 35,000 patients represented.

Following international contacts of these organisations are at your disposal for any information you may need about their activities in their respective country:
Belgium (Flemish) 
CIB-Liga vzw
Nele Caeyers
Bresserdijk 75
2400 Mol
Belgium

Tel.: +32 14 32 23 99
Fax: +
Email: nele@reumanet.be

Belgium (French) 
Association Lupus Erythémateux
Ioannis Kroustalis
Rue Leon Frederic, 43
1030 Bruxelles
Belgium

Tel.: +32 498 976 337
Fax: +
Email: vice-president@lupus.be

Cyprus 

Αντιρευματικός Σύνδεσμος Κύπρου

Josephine Josef Stylianou
P. O. Box 24966
Nicosia 1306
Cyprus

Tel.: +35 722 42 82 85
Fax: +35 722 42 82 88
Email: cyplar@cytanet.com.cy

Denmark 
Lupus DK / Gigtforeningens diagnosenetværk for SLE
Kirsten Lerstrøm
Elmely 19, 2th
3520 Farum
Denmark

Tel.: +45 21 406005
Fax: +
Email: vicechair@lupus-europe.org

Finland 
SLE-ryhmä
Jaana Hirvonen
c/o The Finnish Rheumatism
Association
Iso Roobertinkatu 20-22 A
00120 Helsinki
Finland

Tel.: +35 89 47 61 5601
Fax: +35 89 64 22 86
Email: jaana.hirvonen@reumaliitto.fi

France (AFL+) 
Association Française du Lupus et autres Maladies auto-immunes AFL+
Marianne Rivière
2, rue Fonds de Grève
57420 Cuvry
France

Tel.: +33 87 64 31 87
Fax: +33 6 86 46 3406
Email: riviere.marianne@wanadoo.fr

France (LUPUS France) 
Lupus France
Ginette Volf-Philippot
Rue de Rocroy 7
75010 Paris
France

Tel.: +33 1 45 26 3327
Fax: +33 6 07 35 4869
Email: presidente@lupusfrance.fr

Germany 
Lupus Erythematodes Selbsthilfegemeinschaft e.V.
Simone Müller-Pretis
Weg zum Sportplatz 4
97076 Würtzburg
Germany

Tel.: +49 931 260 20 89
Fax: +49 931 27 52 68
Email: projects@lupus-europe.org

Hungary 
Magyar Lupus Egyesület
Gábor Varga
Manninger János ltp. F/2., Il. lh. 2/9.
9200 Mosonmagyaróvár
Hungary

Tel.: +36 30 341-3991
Fax: +
Email: gabor@lupusz.hu

Iceland 
KJARNINN, áhugahópur um Lupus
Laufey Karlsdóttir
Lindarsmara 57
201 Kópavogur
Iceland

Tel.: +35 4564 45 53
Fax: +
Email: laufey@gn.is

Ireland 
Cumann Cabhrach Lupus na hEireann
Mary Feehan
Carmichael Centre
North Brunswick Street
Dublin 7
Ireland

Tel.: +35 31 493 19 88
Fax: +
Email: desfeehan@eircom.net

Israel 
Irgun Ha-lupus Be'lsrael
Geula Paz & Mazali Irit
P.O.Box 9009
Ramat – Efal
Israel

Tel.: +97 23 535 03 78
Fax: +
Email: lupus@netvision.net.il

Italy 
Gruppo Italiano per la lotta contro il lupus eritematoso sistemico
Augusta Canzona
Via dei Monti Tiburtini 558
00157 Roma
Italy

Tel.: +39 06 451 53 40
Fax: +39 06 451 53 40
Email: lupusroma@virgilio.it

Malta GC 
Lupus Support Group Malta
Prof. Dr. Dion Buhagiar
Lupus Support Group Malta
29, Vincenza G. Pesci Street
Iklin IKL 1421
Malta

Tel.: +35 621 435647
Fax: +35 621 418008
Email: dion.buhagiar@um.edu.mt

Netherlands 
Nationale Vereniging LE Patienten
Ineke Boomker
Niersstraat, 12
5626 DW Eindhoven / Acht
The Netherlands

Tel.: +31 40 262 35 09
Fax: +
Email: sj.boomker@hetnet.nl

Norway 
LUPUSGRUPPEN i NRF
Fatima Maria Lavoll
Bekkeveien 11
0667 Oslo
Norway

Tel.: +47 233 490 81
Fax: +47 917 74 731
Email: convention@lupus-europe.org

Portugal 
Associação de Doentes com Lupus
Rosa Maria Gonçalves 
Avenida Defensores De Chaves
No. 27 4º Dto
1000-110 Lisboa
Portugal

Tel.: +35 121 330 36 40
Fax: +35 121 314 62 16
Email: associacao.lupus@clix.pt

Slovenia 
Društvo revmatikov Slovenije
Dominika Naveršnik
Parmova 53
1000 Ljubljana
Slovenia

Tel.: +38 65 90 75 366
Fax: +38 12 36 24 57
Email: drustvo@revmatiki.si

Spain 

Federación Española de Lupus
Blanca Rubio
C/ Lagunillas, 25
Locales 3 y 4
29012 Málaga
Spain

Tel.: +34 952 25 08 26
Fax: +34 952 25 08 26
Email: felupus@felupus.org

Sweden 
Rheumatikerförbundet, Systemiska Sjukdomar
Greta Thorén
Reumatikerförbundet
Fotbollsgatan 39 12tr
60237 Norrköping
Sweden

Tel.: +46 705 821884
Fax: +
Email: greta.thoren@reumatikerforbundet.org

Switzerland 
Schweizerische Lupus Erythematodes Vereinigung (SLEV)
Britta Krismer
Wydumstrasse 22
8620 Wetzikon
Switzerland

Tel.: +41 44 930 33 64
Fax: +
Email: b.r.y.krismer@bluewin.ch

United Kingdom 
LUPUS UK
Yvonne Norton MBE
8, Legge Lane
Coseley/West Midlands
WV14 8RQ
UK

Tel.: +44 1902 49 82 36
Fax: +44 1902 49 82 36
Email: chair@lupus-europe.org