We have initiated several projects on our own:
Lupus Common Cause
EULAR (EUropean League Against Rheumatism) Recommendations – Patient’s Version
Living with Lupus – an electronic survey globally, where the results are presented at EULAR and International Congress of SLE
Unmasking Lupus - a european art contest on what lupus means for people living with it
And developing this web site, that you’re now visiting, is also a project. This web site aimed also at providing a facility where our cross border communications and working relationships could be enhanced without the tiresome and costly provenance of physical meetings.
Please feel free to contact us for further information on our projects.