Activities

LUPUS EUROPE - is the common voice of all Europeans with Lupus.

It is the forum where the national groups meet, exchange ideas, experience and introduce new initiatives. It’s also the forum aspiring to present inspiration and concrete tools for new advancements under any current agenda for each member to bring back to own organization to be used.

LUPUS EUROPE is also the common forum where any issues too large or complex for the individual, national groups can be handled. Here we’re especially thinking of being involved in political and medical new developments for the benefit of any person with Lupus in Europe: Clinical trials, push for an agenda with a patient oriented focus, creating awareness of our special situation of neither having a disease of little known repute or greater understanding of its implications to person, family, career and social role.

We have initiated projects on our own:

• World Lupus Day
• Lupus Common Cause
• EULAR (EUropean League Against Rheumatism) Recommendations – Patient’s Version
• Living with Lupus – an electronic survey globally, where the results are presented at EULAR and International Congress of SLE

For the last few years it was a project just to develop our web site, that you’re now visiting.
This web site aimed also at providing a facility where our cross border communications and working relationships could be enhanced without the tiresome and costly provenance of physical meetings.

Where our most important gatherings are:

• EULAR Congress (annual meeting in Europe)
• International Congress of SLE (Every three years)

Please feel free to contact us if you require our assistance for any lupus event you are planning.